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Sep 13

Had such a great time last week in Calgary for the IPNA 2022 meeting with @alportuk and @alportsyndromefndn

I met people I've only spoken to with a computer screen between us, saw presentations on the latest research, met families and peers also living with Alport Syndrome and introduced my film trailer to the audience.

These meetings fill me with courage and I'm so grateful for all the incredible scientists we have in the Alport's community, who are working to discover more about the condition!

To think that only 4 years ago, I was still feeling lonely and isolated... wondering how I'm ever going to feel more at peace with this genetic disease... and here we are, feeling stronger because of these meetings that highlight and celebrate the constant efforts of everyone involved.

I'm very grateful to be a part of this awesome group of humans 😁

#alportsyndrome #kidneydisease #ckd #ipna2022

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Aug 28

As long as I get to my deathbed knowing I made the most of every opportunity I could in life, I'll die a happy man.

#fernie #ferniebc #hiking #threesisters #mountain #goodtimes

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Aug 17

Fernie is surrounded by wildfires at the moment... I took these two photos to compare.

I had no idea that wildfires were such a problem here in Canada... We never hear about it back in the U.K.

#fernie #ferniebc #wildfire #mountains #mothernature

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Aug 15

Awesome weekend hiking #heikostrail up and over #thethreesisters with an epic crew! I have no regrets about carrying nearly 7 litres of water from the get go... was hard work but TOTALLY worth it! 💪🏼

Thanks for the goodtimes everyone! Glad we did it!

#hiking #britishcolumbia #mountain #camping #cave

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Aug 4

Great day trekking #mountfernie in the GLORIOUS sunshine... right till we got to the summit! Freezing cold wind and rain, but no complaints! Great crew and beautiful views 😎

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Jul 31

Another great week, it's going to be hard to say goodbye to this place!

But with my kidney function hovering around a GFR of 19 (basically 19%) I am really starting to feel the fatigue after every activity I do... might be time to slow down a bit... not something I'm very good at!

Can't wait to share what I've been editing with all of you!

#fernie #bountiful #kootenay #kootenaylake #wakeboarding #family #camping #goodtimes

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Jul 20

What an absolute blessing this opportunity is. I'm so grateful to be out here, after the last year struggling to sell my documentary. I'm making great progress just getting on and editing the film myself... and the work / life balance here in Canada is exactly what I needed.

Met some awesome people already, spent some quality time with my bro and his girlfriend and can't wait to see how the rest of the trip unfolds!

#adventure #fernie #ferniebc #family #familam #rafting #whitewater #chaos #goodtimes #workhardplayhard

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Jul 12

What an EPIC first week in Canada so far! I'm very grateful for this opportunity to spend the summer here with my brother @fatrat66 and his girlfriend @linda.blackmore.5 for the first couple of weeks. I'll be winging the rest of my time here, house sitting for various friends and people my brother knows.

It's such an inspiring environment and the plan is to get my head down during the week to edit my content and FINALLY put together the documentary film I've been working on since March last year. Then in September I'll be attending the @alportuk International workshop in Calgary.

#fernie #ferniebc #britishcolumbia #threesisters #silversprings #Lake #outdoors #adventure

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