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Mar 9

It's @worldkidney_day today and I just wanted to dedicate this post to say thank you to @nationalkidneyfoundation @pkdcharity @kidneycareuk @kidney_research_uk and @renalassociation for working together to bring awareness to Chronic Kidney Disease!

My battle with kidney disease started from an early age but the crucial moment that planted the most rotten seed in my mind, was when I was ten years old and a doctor informed me that "it's like a timebomb, no-one know when your kidneys are going to fail."

That statement ruled my perspective on life for the next 20 years and affected me in more ways than anyone can imagine.

Although living with Alport syndrome has been the primary cause of my anxiety, episodes of depression and a constant looming cloud of self-doubt... I can now wholeheartedly say that I'm grateful. I'm grateful for my diagnosis, and I'm grateful for the life that it's motivated me to live. Without the threats that accompany my diagnosis, I might not have had the drive to achieve all the things I've done in my life...

I wouldn't have met the amazing community of people I know now, through @alportuk and @alportsyndromefndn - meeting other people going through the exact same challenges as me and learning about the variations of the condition has been truly inspiring. It gives me even more motivation to live life to the full.

Taking a tiny pill made by @novartisuk and @sandozglobal every day since I was 17 has prevented my kidneys from failing sooner... the blood tests, the moulds in my ears to make hearingaids, the countless eye appointments and cataract surgery when I was 18, the advice and reassurance of regular check ups, filling big bottles of 24 hour urine samples and potentially undergoing a transplant in the near-ish future... all through the @nhsengland has helped shape the resilient, active and grateful person I am today.

Kidney disease will never be glamorous, but who needs glamour when there's so much to gain from developing a different perspective to adversity?!

It's about embracing fear, accepting vulnerability and focussing on the positives in life... Happy World Kidney Day peeps! X

#worldkidneyday #kidneydisease #alportsyn

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Jan 16

Few throwback shots from the old riding days. Goodtimes between 2006 - 2010

#bmx #mtb #trails #skatepark

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Jan 13

It was great working with @meandyouprods in summer 2021 supporting @george_ezra @christytattershall and @scarbonarra on their epic 1200 mile trek from Land's End to John O'Groats! Huge congrats to the team @miller_ce @lcthorne @am_antolin

The documentary 'End to End' is now available on @primevideo - had a big grin on my face the whole time watching it, absolutely brilliant!

#endtoend #documentary #film

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Nov 30

Those days when you're ABSOLUTELY exhausted and you've got no choice but to push on to get to the accommodation you've booked for the evening...

I was just about ready to lay down in a bush and sleep for a few hours before crossing the border into Slovakia... but I decided to push on and got to the bed & breakfast under a pitch black sky.

#myonlyantidote #alportsyndrome #travel #adventure #sports #cycling #biketouring #bicycletouring #cycletouring #worldbybike #biketouringnews #travelbybike #adventuretravel #biketravel #adventurecycling #documentary #storytelling #filmmaking #filmmaker
@biketouring @biketouringforever @cycle.planet @bike._.travel @adventurecycling @worldbybike34 @bikewander @photos

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Nov 13

When you wake up in the morning without a plan, get on the bike and ride until you see the perfect spot to pitch up for the night! THE BEST 👌🏼

@myonlyantidotefilm for all BTS content.

#alportsyndrome #travel #adventure #sports #cycling #biketouring #bicycletouring #cycletouring #bikepacking #wildcamping #worldbybike #biketouringnews #travelbybike #adventuretravel #biketravel #adventurecycling #documentary #storytelling #filmmaking #filmmaker
@biketouring @biketouringforever @cycle.planet @bike._.travel @adventurecycling @worldbybike34 @bikewander @photos

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Nov 9

I feel so lucky to have experienced moments like this. I don't skydive anymore and I don't think I will for quite a while... the pandemic really killed all momentum for me. But I'm glad I can look back at these incredible memories of some of my favourite jumps.

This one's from Klatovy in Czech Republic with @bluesky_matt and features in my documentary @myonlyantidotefilm - coming soon 👀

#skydiving #skydiver #adventure #travel #adventuretravel #actionsports @actionsportschannel @jointheteem @skydiving_ig_37ns @skydiving__world @skydivingmoments @skydiving.love @skydiving_world_ig_love @love_skydive_world @skydiving_of_insta @skydiving_official @skydivingpics_ @skydiving_friend_ #filmmaker #filmmaking #documentary #storytelling

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Nov 2

Cycling 550km from Prague to Kraków was an incredibly rewarding experience during my bike touring adventures. This was my first taste of 'wild-camping', having spent far too much money in the first couple of months, trying to find B&B's, hostels and the rare occasional hotel. Couchsurfing and the kindness of the skydiving community had also provided an amazing option to stay in various places for free... but buying the tent and discovering the pure freedom of waking up, riding as far as I wanted to, pitching up and sleeping in my 'temporary protection from the rain' accommodation gave me a true sense of adventure!

Follow @myonlyantidotefilm for all BTS photos, videos and deleted scenes!

#Czech #Czechrepublic #Poland #border #kindness #wildcamping #camping #freedom #alportsyndrome #travel #adventure #sports #cycling #biketouring #bicycletouring #cycletouring #worldbybike #biketouringnews #travelbybike #adventuretravel #biketravel #adventurecycling #documentary #storytelling #filmmaking #filmmaker

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Oct 26

Know yourself... because people will get you wrong all the time.

#mindful #selfawareness #knowyourself

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